No definitive answers yet.
Our oncologist reviewed the results of the tests done last week. The octreotide scan came up normal all around. The urine analysis was negative for the tested component. The blood work came up elevated for colon/gastrointestinal and thyroid cancer; normal all other. The thyroid ultrasound shows cystic areas. Put together, an inconclusive picture.
At this point, we will do additional bloodwork to investigate two possibilities: 1) Medullary carcinoma of the thyroid (a slow growing tumor), and 2) Neuro endocrine tumor of the pancreas.
The bloodwork results will determine whether to do a biopsy of my thyroid. Our Oncologist will submit these and all prior findings to the MD Anderson specialists who have the techniques, technology and experience to sort through these mixed results and call for further diagnostic work-ups and/or determine a final diagnosis as a foundation for a treatment plan. He is pressing for an early review, not only to get an answer for us as soon as possible, but also because MD Anderson is beginning a research program in January for a new medicine (serafamib) that could apply to my situation if in fact the thyroid diagnosis is confirmed. At present there is no standard treatment plan for this type of thyroid cancer. The good news is that this is a slow growing type of cancer.
More blood drawn today for the follow up tests. We await word about progress in being seen at MD Anderson. Our oncologist feels this is the best place for an accurate diagnosis and quick entrée to a treatment program as they see people from all over the world with weird forms of cancer and have the latest information and programs available to deal with such rare situations. There is a good chance that at least some of the treatment can be arranged locally so that the stress of travelling and being away from home can be reduced.
The plot thickens. I've always loved a good mystery ... now I AM one! Next chapter as soon as we have information or results.
Thank you all for your positive energy, your prayers and affirmations.
Copyright 2006
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